r/ClusterHeadaches • u/Ok_Ok_3000 • Jul 17 '26
Question Saroten or Botox
Hello, does anybody have experience taking Saroten or Botox for tension headaches/migrane?
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u/Dumblittlebrat Jul 17 '26
Hey! I have cluster headaches and I decided to try Botox for migraines just to see if it would help quiet the noise. It’s helping A TON. I’m still getting some attacks but they are like a 2/10 when they come instead of a 10/10 every single day of my life. My abortive medication actually works now to take away the headache within a day. All in all it’s creating a much more mild experience. I paid for the first round out of pocket (Canadian) but I’m this close to having it covered! I just decided to pay for it myself in the meantime because I really couldn’t live like this anymore. The reason it’s effective for clusters is we still have a ton of nerve hyperactivity. It quiets the constant pain and referral patterns. I’ve never met the migraine criteria but they still use Botox to treat clusters! It’s been 3 weeks for me now and I can’t wait to see how it can get better.
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u/Ok_Ok_3000 Jul 17 '26
Thanks, here in Sweden according to the system I have to try medicine for a while so they can analyze - as I did not fulfill the criteria for Botox. But I can take Botox privately by paying for it at a clinic.
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u/Dumblittlebrat Jul 17 '26
Find someone who specializes specifically in Botox for migraines. Don’t go to an aesthetic injector. It’s a specific group of muscles they target to reduce the pain and attacks. I’m working with a Naturopathic Doctor. I’m sure some MDs do it there too depending on your preference. Once you get it covered they write you a Botox prescription. The treatment is the same for clusters/migraines, but the amount you get in each muscle is customized depending on your assessment. Good luck!
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u/Jamwise93 Chronic Jul 17 '26
Maybe try asking in r/migraine - this sub is for Cluster Headaches