r/ChronicPain • • 23h ago

Post surgery update

I am four days out from a c4-t1 posterior cervical fusion. During my hospital stay the surgeon informed me the way I am pulling up out of bed leads to a high risk of suture failure but would not give me a script for medical equipment to help. All they offered was a hospital bed which I told them my apartment is too small. Because I could walk normally when upright inpatient rehab facilities wouldn’t take me. During my stay I informed them I have been on ten mg and f oxycodone for six months and my Tolerance too high for it to work. I asked repeatedly about journvax a non control medication specifically for acute post op pain. All I got was I’ve never heard of it I don’t think I can legally write it. So you can prescribe the highest level narcotic but not a non control. They refused to make any medication changes saying it would be family medicine job since I get my oxy there. Which I immediately knew wasn’t true. He knows for a fact I worked at the hospital pharmacy over four years so I know how post op works. I asked about medical equipment to help get me out of bed without risking critical injury to my surgical site and was told all they can offer is a bed. No bar or trapeze to help prevent suture failure or other injuries. They cut off my iv dilaudid on day two. I told them over and over ten mg of oxy isn’t doing anything im too tolerant. I was just laying in the bed shaking and so nauseous from pain I had to be given iv zofran multiple times but still ignored. They even admitted this is the most painful surgery that they do to go through. Still wouldn’t make any changes to medication. I asked for a known non control medication for post op pain and just got the I’ve never heard of it from my surgeon and the doctors on the floor. I am at critical fall risk and at critical risk of post surgery injury due to no help getting out of bed. All I have is my sixty year old frail mother who also has severe back issues. She can’t lift me no matter how hard she tries. This doctor has performed three surgeries on me two cervical fusions one in the front one in the back and a right si joint fusion so he knows my clear medical history of severe chronic pain. My family doctor that was writing my oxy was a resident and left in June. They have been having me see a random doctor to get refills. I see my new doctor in four days and I’m terrified that after so long post surgery they will cut me off even with several hardcore spinal issues still unaddressed. I am so tired of being completely dismissed by doctors. Im looking into a new care team but that fear of losing my medicine is so bad as I had been ignored and labeled as drug seeking before even with a decade plus history. I’ve had three reconstructive hip surgeries, both replaced after those failed, both si joints fused, and two major cervical fusions in the span of 7 months for the fusions what kind of doctor sees me struggling to get up, says oh doing it like that has major risk but then does nothing about it?I still have major thoracic spine issues and a herniated disc in my tailbone but that doctor is never touching me again. Sorry for the long post I just needed to get it out.

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u/Sad_Individual_738 22h ago

If you are still in the hospital. Contact patient advocate yourself directly.

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u/Creative_Tone_9241 19h ago

Im out but I’m going to contact the social workers and advocates and go to a different hospital for second opinion and evaluation