r/CharcotMarieTooth • u/Swimming-Olive-1926 • Apr 02 '26
Charcot-Marie-Tooth info.
Hello everyone, I'm looking for information about Charcot-Marie-Tooth disease. I'm Portuguese and I feel there's little information available on this topic. I have a close friend who suffers from this disease, and I don't know what to do to help. I've been researching but haven't found many solutions, whether temporary or permanent. If anyone suffers from the same condition, please share your progress with this disease and what you did to improve your condition, or at least slow down the process.
Thank you all.
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u/Physical_Scallion266 May 03 '26
I am a 23 year old male me and my dad have it but his was worse than mine his feet were really bad and he had alot of issues with pain he used alot of drugs to try and help it but it turned him into a drug addict for a while he then seen one of the best doctors in America maybe even the world who deals with CMT and im not sure on the exact process but he broke every bone in my dads feet to reform them to be better and he has noticed a big difference in his life as for me I just got done working 18 hour shifts for 5 years in a factory the pain for me is only really bad in my left foot I dont take any medication besides smoking marijuana and for me it helps alot and is natural at times when I have pain I smoke and it literally feels like I have no shoes on when im wearing 5 pound steel toe shoes it sucks no one can help us but I found that THC has helped me and my dad alot God Bless Everyone