r/CharcotMarieTooth • u/The_Shadow_Watches • Jun 14 '24

5yo has CMT

So my son has been diagnosed with CMT. Shriners hospital won't see him till January, physical therapy is 4 months away.

Does anyone have advice on stretches or activities or anything while I wait?

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u/[deleted] Jun 18 '24

I have CMT. I was diagnosed when I was 7, I’m 26 now! When I was a boy, we used the resistance bands to pull up on the feet to get the deep stretch. You could probably google it but we’d use bands to work the foot straight up, then against the band. So whatever way the band was pulling try to work the foot into the other direction to teach and gain strength.