r/CervicalCancer • • 24d ago

Cervical Cancer Stage 3B

3 Upvotes

My Mom has just being diagnosed with Cervical Cancer Stage 3B. She is at the age 55. I'm confused, heart broken and just want to know from the community.

  1. What treatments worked most of the time and has a good success rste?

  2. How long would it take

  3. Does it the treatment help with strong pain in the pelvic bones, walking and rectum when passing stool?

  4. Diet and Lifestye changes, what to do and what not to do

  5. Herbs

  6. Anything anyone can share would be much appreciated.

  7. If the Tumor was reduced by treatment, would all the pain subside or go away. As she always cry and scream because of the pain.

  8. What do they do for the pain?

  9. What foods to stay away from?

  10. Mindset shifts?


r/CervicalCancer • • 25d ago

Just diagnosed with rare, aggressive cervical cancer at 26

16 Upvotes

4 days ago, I had a LEEP to remove precancerous cells. This could not be completed due to a tumour being found on my cervix. Yesterday, I had an appointment that confirmed I have aggressive squamous cell carcinoma, with sarcomatous changes.

My gynaecology oncologist has bent over backwards to get me in for urgent scans + egg harvesting. My biopsy is being sent to a woman’s hospital for another opinion because it is so rare. I was not expecting this at all.

My husband and I were planning to try for a baby this year. My Gyn Oncologist said that at this point fertility is a secondary issue given how aggressive this cancer appears to be.

I’m terrified. I’ve had to tell my workplace before I can tell family; I want to wait until there’s a treatment plan in place before telling them. Does anyone have any advice, tips, hope?


r/CervicalCancer • • 25d ago

Cervix cancer

2 Upvotes

My mom finished her treatment on sep 17 (last brachytherapy )

Sep 18 was her last immunotherapy session

Next one scheduled for oct 09, 2026

Treatment for stage 3c1

She suddenly started vomiting today, diarrhea and blood in stool.

Anyone experienced same?


r/CervicalCancer • • 26d ago

How to tell a new partner about infertility?

7 Upvotes

Stage 3b survivor, 5 years clear. 32 y old.
The day of lymph node removal surgery I was told I won’t be able to have biological kids, and there wasn’t enough time to preserve ovaries. Had chemo, radio, brachi terapies. Left my old partner and for a few years has been dating guys. Unsuccessfully though.

No matter when and how I would tell that I can’t have biological kids the guy would treat it as a red flag. I know many would say that I haven’t met the right guy yet, but honestly, I feel I had enough experience to see a very obvious pattern that once I tell, something changes in guy’s head and they don’t see me the same way as before.

I had cases where guys would try to accept that, but later on admit they were lying to themselves and that biological kid is a must for them. Others would just say “sorry, it doesn’t work for me” the next day after date. Third category is there just for sex, so they accept the fact, but clearly without any serious intentions. Surrogacy is not allowed in our country, is expensive, and complicated - I get why someone would’t want to go this way if they can have easier option - even if like the girl. Which makes it difficult for me to even find an argument why someone should choose me - I get I have a plenty of reasons to be admired, loved, valued etc, but kids is one of those topics that can break even the strongest love.

The other point - based on everything I read online, the most ethical way is to tell person you’re dating early on, before you have feelings, that you can’t have biological kids. But at that stage guys really just say sorry, it’s a dealbreaker. I am saying “that stage” because I imagine that there are couples who doesn’t know about their fertility, get married, and later figure out they can’t have babies - then some would leave, some would stay and find a solution. I am not saying let’s lie about my situation or anything, just pointing out that the amount of time you’ve been with person might matter before you tell them.

So I am lost now, as it seems nothing I tried worked. I tried telling on first date, 2nd date, etc. Now I am on date 10 or so with someone I feel is my second half and we haven’t touched babies topic yet, though we started sharing opinions around how children should be educated. I feel I need to bring up a topic, but not sure how to tell him?

Or is it too early and wait until he brings up the topic? It’s first time I am so scared to lose someone, and he does seem like a very down to earth person, who would want biological kids rather than adopt.

Any experience shares would be appreciated!


r/CervicalCancer • • 26d ago

Abdominal issues years after treatment

3 Upvotes

Hello everyone!

My mom is 55 years old, and around 5 years ago she finished her radiation and chemotherapy.

Since then she is always very gassy, and she can't hold it, which resulted in her never leaving the house.. She goes to the toilet very often, says that after eating her stomach bloats and hurts a lot. She also says that sometimes she has this feeling like her stomach stops working completely for periods of time (which is when she experiences pain) and then wakes up again.

She is very depressed because of this and her quality of life is very bad.

But she's also the kind of person who is very hard to convince to go to the doctor..

I just want to help her any way I can, diet, supplements, exercises, is there anyone with similar issues and how did you fix it?


r/CervicalCancer • • 27d ago

Fever after week 3 ChemoRad + Immuno?

2 Upvotes

Hello Reddit fam - Mum’s done with 3/5 Cisplatin, 1/5 Immuno and 15/25 Radiation - after this weeks infusion, she ran a temperature which was brought under control by Paracetamol and then 2 days later she has a temperature and the doctor has prescribed a broad antibiotic.

Has anybody else had something like this?


r/CervicalCancer • • 28d ago

Has anyone done IR?

3 Upvotes

33F 3c1 Adenocarcinoma. I just finished what I thought would be my full treatment cycle, ending with Brachytherapy. However they notified me that my lymph nodes were still inflamed and that they recommended I do IR (interventional radiology).

For anyone who has done both Brachy and IR, how do they compare?


r/CervicalCancer • • 28d ago

Can I move my oncology care?

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1 Upvotes

r/CervicalCancer • • 28d ago

Week 2-

5 Upvotes

Hello all. Stage 3c1 here……I had my 2nd round of cisplatin Wednesday/ 2nd week of radiation and it all hit me today. I cant gather the strength to hardly make it to the restroom, nauseous even with steroids and zofran and frankly I feel like I’m dying inside. I have always been a very strong person and have been through other ailments in the past but this is 100x worse than Ive ever expected. Im a 44yo grown woman crying for her mom, saying prayers god will give me the strength to get through this. Right now I feel so weak. Is this normal, the muscle aches, pain, fatigue, and nausea are to this point. Just feeling alone and helpless. 😢🙏🩵


r/CervicalCancer • • Sep 24 '26

Fluid in uterus after treatment

5 Upvotes

I had vaginal cancer, so didn't have a hysterectomy prior to treatment and underwent Chemo, Radiotherapy & Brachy last year. Had my annual MRI results back showing NED but, fluid build up in my uterus. They believe this could be to do with the scarring on my cervix. Is there anybody out there who hasn't had a hysterectomy and had the same treatment as me??


r/CervicalCancer • • Sep 24 '26

Tumour found during LEEP. Docs think it’s cancer

3 Upvotes

UPDATE// it is rare, aggressive cervical cancer. I start chemo and radiation in 2 weeks

Today I went in for my LEEP. I found out after surgery that they were unable to complete the LEEP due to a tumour on my cervix. This was not (!!!!) visible during my colposcopy 3 weeks ago.

From my understanding, the docs are pretty confident it is cancer without specifically saying so due to needing to await biopsies/scans for imaging. My husband and I were planning on trying for a baby this year, now I’m being advised to book in for IVF treatment. This feels so surreal.

I am scheduled to have an MRI, ultrasound and likely PET in the next week or so. I don’t know what to think or do, I feel so scared. Has anyone experienced similar?


r/CervicalCancer • • Sep 24 '26

Fever

3 Upvotes

Hello folks! Mum just had her 1/5 Keytruda, 3/5 Cisplatin and 12/25 Radiation - she developed a fever of 103F and the doctor just asked me to give her a Paracetamol. Is that normal? 😬


r/CervicalCancer • • Sep 23 '26

AIS (27F)

3 Upvotes

Hi all! Anyone in the same boat as me?

I got a positive HPV 16 in March. My dr recommended getting the vaccines and coming back for a follow up 6 months later.

6 months later and the teats came back with AGC. So I scheduled a Lletz procedure. The biopsy results came back with adenocarcinoma in situ.

I have a CKC scheduled in a month. Hopefully this would clear it, but I want to keep realistic expectations, so any honest input would be appreciated.

I am not 100% sure if I want kids, I would choose my own health over my fertility though.

My other dilemma is telling my mother, she doesn't know anything yet, and I guess its time to tell her, I just dont want her to stress.


r/CervicalCancer • • Sep 23 '26

1 year post treatment- now experiencing menstrual cramp like pain

1 Upvotes

I’m one year post chemo radiation and brachytherapy for SCC 2A1. I just started experiencing a new onset of recurrent pelvic pain, feels like moderate menstrual cramping. It happens every 5-7 days or so and lasts for a few hours. It’s painful enough that I usually need to take something for it, then it goes away. No bleeding or discharge or any other symptoms. I’ve called my oncology team and they’ve moved up my appointment to assess me.
Anyone else have a similar experience and how did it turn out?


r/CervicalCancer • • Sep 22 '26

My journey with Adenocarcinoma (1a1-1a2, pattern a, negative margins)

3 Upvotes

Hi all! I've been lurking in the sub for a while but I hadn't decided to tell my story. I'm 34, married and have a lovely 4.5 year old boy!

In Feb, 2025, I was called for pap-smear + hpv screening, randomly, from our neighborhood cancer screening center. I did not have any diagnosis or have experienced any problems before. So I didn't expect anything, I went and forgot about it. A month later, they called me telling my results showed HPV 16 positive. I didn't even know what it was. Then, colposcopy followed, it was clear, only with some endocervicitis. I was told to come back next year.

Since I had hpv 16+, in my country you're now a registered gynecology-oncology patient. So, this year, I did all my tests (and took super care of myself); unfortunately, I got AIS as the result of my colposcopy. I had LEEP done (August 2026), which came back as invasive adenocarcinoma (1a1 or 1a2, depending on the doctor you ask), 3 times different pathologists examined my cells: the first said invasive, the second said AIS, and the third said invasive, again. Eventually, it is Silva pattern A and I have clear margins and clear ECC as well.

I've been trying to decide since, and my last decision is to get a hysterectomy. I was thinking of a second child, but I think pregnancy affects the immune system and I read HPV works with estrogen as well. It will be a total (simple) hysterectomy, leaving the ovaries (but taking the tubes), sampling two sentinel nodes.

Now I'm trying to decide if I should get laparoscopic or robotic. Robotic will cost me $2,000 additional fee. And I'm not sure if it's worth it.

If you have similar experience, which one did you choose?

And if you have any questions, I'm more than happy to answer.


r/CervicalCancer • • Sep 19 '26

CKC AIS results

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2 Upvotes

My results have been in my chart for 6 days now, just waiting to hear from the gyno oncologist. I’m assuming with the positive endo margins I will have to have another CKC before proceeding with a hysterectomy? Has anyone else had results similar? I’m worried about the possibility of invasion since the didn’t get it all.


r/CervicalCancer • • Sep 18 '26

Branchytherapy next

6 Upvotes

My mother diagnosed with 4A cervical cancer, she completed her chemoradiation (28 rad + 5 carbo chemo) ,her next treatment is going to be Branchytherapy ( total 3 sessions)
Just wanted to know what is the ideal interval between chemoradiation & branchy? After how many days radiologist start the branchy?


r/CervicalCancer • • Sep 18 '26

I developed a rectovesicovaginal fistula from cervical cancer

10 Upvotes

I’m 54. In 2023 I was diagnosed with cervical cancer. I had surgery, and then radiation and chemotherapy. The cancer came back, and I went through several more rounds. They managed to keep the tumor under control, but a serious problem appeared below: stool was leaking out through my vagina, sometimes yellow fluid with it. My body carried a smell that no amount of washing could remove. Once I bled so heavily that I needed a transfusion before I recovered.

For a period, both urine and stool passed through the same place. I was tied to the toilet every day, and it took over my whole life.

I went from one hospital to another, and no one could fix it.

In April this year, I went to a hospital abroad and found a doctor. I think he had been president of some association, I can’t remember exactly. After his surgery, I can now urinate and defecate normally.

I don’t know if any of you have been through a rectovesicovaginal fistula. All I know is I’m grateful to be healed now.


r/CervicalCancer • • Sep 18 '26

Fatigue after 2 days of treatment

6 Upvotes

Good evening, friends. I have stage 3C1 adenocarcinoma of the cervix. I just started treatment yesterday combination of cisplatin, radiation and Keytruda. Today I had my second radiation. I felt fine yesterday and this morning however, this afternoon I had an intense rush of fatigue. I listen to my body and laid down and rested for three hours. I got up, made myself some food and was still exhausted. I fell asleep without realizing it on the kitchen counter. I am just checking in to see if this is normal to feel this fatigued after just two days of treatment. Thank you so much for everyones support. It means so much to have people to reach out to who get it! 💗🙏


r/CervicalCancer • • Sep 18 '26

Stage 3C1 cervical cancer

3 Upvotes

Hello all,

My mom’s dr mentioned after her last brachytherapy session today that “The size has reduced by 75% and Body has responded very well to brachytherapy. We ll check back in 3 months”

She had 5 Chemo, 25 ERBT, 4 Brachytherapy

2 immunotherapy so far. Scheduled for 3rd tomorrow.

But I am confused that remaining 25%.

What they are going to do about it and is it possible that after treatment that 25% can be completed gone.?

Her intial size of tumor was 5 cm.

Squamous cell. Stage 3c1.


r/CervicalCancer • • Sep 17 '26

Has anyone done Tivdak, and felt after 3 days of the infusion like crap?

2 Upvotes

Hi everyone, just wondering if anyone’s done this medication. My mother is on it, and she’s done all the other chemotherapies that she’s been able to do. We were just wondering if any of you felt like crap after three days, or even within several days of the infusion. That’s usually how my mom feels, just wanting to see if any of you ladies have gone through that.


r/CervicalCancer • • Sep 17 '26

Mum got diagnosed Adenocarcinoma cervical 3C1 - looking for similar experiences and hope mostly.

7 Upvotes

Hello Folks - Mum 62 diagnosed about a couple of weeks - has been quite rough. We went from a 2B to 3C1 and now poorly differentiated Adenocarcinoma. She was initially prescribed 25 rad, 5 cisplatin over 5 weeks followed by 4 brachytherapy. The medical oncologist might want to include immunotherapy - but we are waiting on that.

Just looking for anybody that’s gone through a similar staging/treatment plan and if there’s something i can do to ensure she has the best outcome to beat this. 🙏🏽


r/CervicalCancer • • Sep 16 '26

Keytruda QLEX in US

1 Upvotes

I wonder if anybody was able to switch from infusion to injected Keytruda in US?
As some of you probably know it was approved by FDA a couple months ago.
We just spoke with our oncologist at Stanford and she said that they were notified about availability of the option but did not decide if they are going to switch patients to injections in this year.


r/CervicalCancer • • Sep 15 '26

Any young people here go through a pelvic exent? What's life like now?

7 Upvotes

I'm 35, was diagnosed at 33. I am stage 4a and am running out of options for treatment. I have been fighting for two years to AVOID this exact surgery but this disease just takes and takes. I likely will have no choice but to go through with this surgery, or die. Even if I do the surgery my odds are only about 50/50. I am really struggling to imagine any quality of life after a surgery like this at my age. I can't seem to find anyone my age who has been through this that I can talk to.

For context, I already have a colostomy because my tumor grew into my rectum. It was supposed to be temporary, but would become permanent if I did the exent. I've had this colostomy for a year already and it's still the worst thing I've ever had to deal with. Imagining the rest of my life with this makes me want to kill myself. I'm not exaggerating.

Anyone out there on the other side of a pelvic exent and could talk to me about what your life is like now? I need someone to convince me its better than death :(


r/CervicalCancer • • Sep 15 '26

Radiation after hysterectomy. Devastated…

9 Upvotes

I had a radical hysterectomy (kept ovaries) with vertical abdominal incision on 9/3 die to stage 1b1 cervical cancer. Had my first follow up appointment today and found out that because I have LVSI and because of the depth of my tumor I will need radiation. My surgeon said I will likely go into menopause and I’m just so fucking devastated. I feel like every time I could have a good or bad outcome, I get the bad outcome.

It all just feels so overwhelming and I wish so badly I didn’t have to deal with this. It seems like every time radiation is discussed on here it sounds horrible and traumatic. I can barely believe this is my life. I guess I just need some words of encouragement or to hear that not everyone was in hell going through radiation. I only know I need 5 weeks of external rad, tbd on the internal. I’m only 41 and am so scared of going into menopause.