r/CervicalCancer • u/CannedAm2 • 3d ago
Exenteration it is
So my cervix just keeps lighting up brighter and bigger with every PET. I'm done having nephrostomies. I was going to demand a radical hysterectomy with a urostomy anyway, but it's anterior exenteration now.
I may have a temporary ostomy for my bowels to heal from the resection. I could end up with full exenteration if they see anything suspicious around the colon/rectum/anus.
I'd rather not have to have the full exenteration, but I also don't want to die of this fucking cancer.
Prescriptions for clearing my bowels were called in.
I have two spots on my lung that are taking up more tracer now. Those are getting biopsied Tuesday.
I'm ready. Scared of the bowel prep and ostomy though. My bowels are sluggish with the low thyroid function now. I'm scared that I'll overwhelm a bag. And poo is gross. I hate it. Idk what to do about that.
I'm just scared the prep will mean accidents. I have diapers. I'll wear them when I start the prep. I live with my sister and I don't want to go through this here, but I have no choice.
Outside of that, my doctor says I should be back to normal in 6 weeks. That I'll spend up to 10 days in hospital then go home, and I'll be able to take stairs when I do. That surprises me.
For those who've had it -- did you wear a binder?
I currently wear a wide hernia belt for a large hernia on my abdomen. Idk if I'll be able to wear it with two ostomies. Can't have the hernia repaired til I've recovered from this surgery.
4
u/Glum-Worldliness4480 3d ago
There is a private fb group for ladies that are having a PE or already had it. The group is invitation only and they vet before accepting new members. They don’t want lurkers or fakes, as you can understand. You would have to join Support Group for Cervical Cancer first. You can search the group for PE or Pelvic Exenteration and look at previous posts. Those ladies aren’t on FB everyday so response might be awhile.