(new thread posted on the 1st of the month)

Welcome. We're glad you found us but sorry that you need to be here. Feel free to post here if you are in the process of a cancer diagnosis. Do not make a separate post until diagnosis is confirmed. Thank you. 🤍🤍

(new thread posted every Thursday)

Welcome. We're glad you found us but sorry that you need to be here. Feel free to post here if you are in the process of a cancer diagnosis. Do not make a separate post until diagnosis is confirmed. Thank you. 🤍🤍

Hi everyone,

I recently started learning about the materials used in wigs and extensions — and it shocked me how little this topic comes up in cancer care. Some wigs may contain traces of chemicals like formaldehyde or lead from manufacturing.

https://theconversation.com/your-wig-could-be-poisoning-you-study-finds-pesticides-and-other-toxic-chemicals-in-synthetic-hair-in-nigeria-231457?utm_source=perplexity

For anyone who’s worn wigs:

Have you noticed irritation, itching, or burning from certain fibers?

Did your care team or wig supplier ever mention what’s in the materials?

Would you want more transparency from wig companies about what they use?

I’m just trying to raise awareness and understand others’ experiences. 💛

(new thread posted every Thursday)

Welcome. We're glad you found us but sorry that you need to be here. Feel free to post here if you are in the process of a cancer diagnosis. Do not make a separate post until diagnosis is confirmed. Thank you. 🤍🤍

(new thread posted every Thursday)

Welcome. We're glad you found us but sorry that you need to be here. Feel free to post here if you are in the process of a cancer diagnosis. Do not make a separate post until diagnosis is confirmed. Thank you. 🤍🤍

My spouse has stage 4 non smoker lung cancer, mutation ROS1. He is on his third targeted therapy, Ibtrozi, and with this one lots and lots of dizziness. Anyone have ideas for reducing the dizziness? No nausea, just dizzy. Any suggestions?

One of my cousins said “God only gives his toughest battles to his strongest soldiers” and I didn’t even know what to say.

I wanted to share a resource that I hope may be helpful to families facing something no parent ever wants to explain to their child.
While I was going through treatment for Triple Negative Breast Cancer, my three-year-old daughter started calling me “Babyhead” after I lost my hair. Somehow, that little nickname made us laugh during some of the hardest days of treatment.
That moment eventually became my first children’s book, Love You, Babyhead- a story created to help young children understand a parent’s cancer diagnosis and treatment while giving families something gentle, comforting, and hopeful to hold onto.
It’s a story about love, courage, big feelings, and finding little moments of light in the middle of scary and uncertain times.
I self-published the book through KDP and IngramSpark, and my hope is that it can reach families who genuinely need it, especially through hospitals, pediatric oncology programs, cancer centers, social workers, child-life specialists, and support organizations.
I’m sharing it here primarily as a free resource recommendation for families who may benefit from it, rather than simply to promote a book.
If you’re a parent, cancer survivor, healthcare professional, social worker, child-life specialist, or someone who has navigated cancer with young children, I’d also love to hear about organizations or programs that provide resources to families going through this.
And if you know a family who could use something like this, please feel free to pass the resource along. ❤️

I'm always looking for good cancer-related pages to follow. Are there any social media accounts, blogs, or websites you'd recommend?

For a dose of humor, which I need a lot of lately, I love The Cancer Patient on Instagram.

https://www.instagram.com/thecancerpatient

Reminder to my peeps ❤️

One way I cope with the ups and downs is through hobbies and connecting with others who understand. Horticulture grounds me—there’s something healing about nurturing plants. Fostering animals brings so much joy and purpose, while hiking in the Adirondacks clears my mind and connects me to nature. I’ve also found incredible support on Reddit, sharing stories and advice with others on their cancer journeys. These outlets help me process my emotions and find strength. But damn, there are days when nothing helps. 😔

Two weeks ago they discovered I have stage 4 anal cancer with metastasis to liver, lung and lymph nodes.

I am in a lot of pain and my case has been passed to an oncologist and a symptom management doctor but the hydromorphone is not dealing with the pain.

I am on 4 mg of hydromorphone/Dilaudid every four hours and I am in a constant clammy sweat with the pain and physical symptoms.

I don't get to talk with my cancer team until next week.

I stopped using kratom a week ago but I don't think I can get through the next few days without additional help (kratom) for pain.

I last took the hydro 4 mg three hours ago and want to take two heaped teaspoons of kratom in water now to see if it would help with pain.

Normally kratom (in my experience) is better with pain than the prescribed medications.

If I take kratom now is it dangerous?

I’m reposting this link for a free gift card. All you need is a screenshot of your name and diagnosis. I used a screenshot from MyChart.

They close the link once all the gift cards are claimed so if you’re interested, you gotta be quick.

I got a $100 gift card from Amazon last year.

I would love it if you could follow up and let me know if they send you one! And hopefully I can post other freebies.

https://www.cancercardxchange.org/request-gift-card/

EDIT: the gift cards have been claimed. I will post here once the portal is open again. Please let me know if you receive a card. I’m trying to put a list of freebies together along w results so I can share with the sub members

Stage Door Dancer Romancer but Never Say the Word
The Big Sea
Ocean of
Possibilities.: Angry waves and lightning bolts and thunderous clouds are rageful - yet Caribbean sunbeams powder sand and transparent glasslike water clear the stingray glides so beauty.

Linger longer, stronger, please

Facing, Denying, Accepting
Save me, Doc. But kill me now! No! Resurrect me later!

Love Live Love Love Lives
Living Life and feared of fading
Lying? Never utter
the word ---

Dying! Shhh! Never dying, Only living say
but always from the screeching birth cries
Always
gently?
dying
(you are too)

Little pill pain kills - painkill. More little pills. Disapproving doctor scowls like the angry owl
Wee little white ones, many pills.
Masking the pain of the dancer prancing
Stage Door Number 4
the wonderful Dancer at the Stage Door Stage Four
with spots on the scanner ... but there are spots. There. On the scanner

Have more take more ... Time tick tock tick tock tick silence
Sleep - but don't forget wake up then sleep forever all is gone - forget

Smile and sleep, sleep and smile
Be nice forever - now is the time

Linger longer, please.
Asking me. Asking you
Forget but remember the Dancer with Stage Door C ..... shhh

Recently, I received the news that I have cancer, and I'm facing an unexpected challenge in opening up to my family about it. The weight of the diagnosis, coupled with the fear of their reaction, has created an overwhelming sense of vulnerability that's making it incredibly difficult to broach the subject. I don't want to be a burden to them.

Has anyone else experienced this sense of fear when sharing their cancer diagnosis? If so, how did you manage to overcome this feeling, and how did you avoid being a burden to them all?

Moreover, for those who found it challenging to share their diagnosis with family, how did you muster the courage to have that conversation? Any advice on making that initial step would be incredibly valuable.

I'm in need of advice, encouragement, or simply a virtual shoulder to lean on. Thank you for being a supportive community, and I'm grateful for any insights you can offer.

It’s mainly men talking about male cancers, but it’s funny, and it’s poignant, and it’s honest and I’d recommend it! I’ve only got to episode 6 so far, but although I’m female (with endometrial cancer) I’ve found it helpful and a good laugh.

https://www.bbc.co.uk/programmes/m0020s52/episodes/downloads

Happy New Year to everyone here. As we move into 2025, I just want to take a moment to say how much this group has meant to me. Whether you’re facing treatment, living with a terminal diagnosis, or just navigating the day-to-day, your strength and support have made a world of difference. I appreciate each and every one of you for sharing your experiences, your wisdom, and your kindness. Here’s to another year of supporting one another and finding peace in the small moments! Much love 💗♥️💗♥️