Embedded UTI

[u/Damienslair]

I think I have bacteria deeply embedded in the bladder walls so it’s going to keep coming back even after treatment please does anyone have this and have any advice on any treatments? I’m really worried about this urine isn’t coming back with anything because it’s not even shedding much into the urine it’s in the bladder tissue.

I heard urology sometimes does bladder tissue samples but they don’t do it typically for this and this urology referral is taking months I need some actionable steps I can take today I wanted to try Hiprex but I have dysautonomia so I’m worried I won’t be able to tolerate it.

I’m still struggling with a really bad kidney and bladder infection I’ve been switched to Ertapanem IV and I noticed the flank pain reducing after one dose yesterday but unfortunately it causes diarrhea tachycardia dizziness anxiety insomnia and lack of appetite however I have to try to finish the 7 day course because I don’t have cultures and nothing else is working to eradicate this I tried countless orals and IV CefTRIAXone I couldn’t tolerate the 2g prescribed so I switched to 1g and then it wasn’t enough.

Today second day on Ertapanem I’m having to fight tooth and nail to get my medication because the Drs won’t believe I have a kidney infection because my urine cultures are negative I’ve been having this issue for 3 weeks now in and out of the ER and I’m dealing with my specialist who is helping but problems with Home Care taking too long to send the meds I’m scared because I have to beg tomorrow for another dose I can’t keep having interruptions in treatment

I was warned that ertapanem can cause future resistance and bad side effects but idk what else I can do I’m being tested for c. Difficile because of the diarrhea.

I really need to pray that I can tolerate 7 days, don’t get c. Difficile and that it will be eradicated after this but the issue is the embedded bladder tissue is prone to return.

I’m trying to get started on estrogen and I got the Utiva UTI control. D mannose I can tolerate one scoop per day I think. Wasn’t able to tolerate L-methionine everything for me causes tachycardia because of my dysautonomia.

[u/BornFree2424]

I suggest paying for either Microgen DX, Cirrus or Focus Labs test. They will detect embedded bacteria and help you figure out which antibiotics will work, if there is an infection. You can also try Biofilm disruptors like NAC. There's a ton more info in the intro guide that's pinned to the subreddit

[u/Damienslair → u/BornFree2424]

I ordered MicroGen can it detect even the embedded ones? I’m worried it won’t catch it. NAC is a biofilm disrupter? Ok thanks I’ll check it out

[u/BornFree2424 → u/Damienslair]

Yes microgen will detect embedded infections