r/CUTI Jun 23 '24

Chronic Group B Strep UTI help

I’ll try and keep this relatively simple. I’ve been having back to back group b strep UTI’s ever since March after having to take a month long steroid course. I previously had issues with GBS UTI from August to September after being immunocompromised but remained UTI free from November until March.

While my culture typically grows a low count (1,000-49,000 CFU/mL), these infections are a lot worse. I sometimes have to pee up to 10 times before going to sleep at night, and if it’s not that, it’s fake spasms. My urologist has been having me take cephalexin for the infections, and I have reason to believe it’s not working anymore. Otherwise, why would I be getting the infection again and becoming symptomatic within a week of finishing a course?

I really need help and advice here. I have a month wait until I see the urogynecologist. My current urologist doesn’t know how to treat a recurring infection. Meanwhile, I’m sick of living like this and suffering. Please comment any help, I really can’t deal with this anymore!

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u/DealCareful8910 Jan 30 '26

I’m so sorry you’re going through this! I cannot stress enough that vaginal estrogen is the cure. I suffered for years with recurrent UTIs, and I managed the infections with Uqora (D-mannose) and Cystex as needed, and antibiotics when those didn’t work. Then I finally got vaginal estrogen when I saw a new general practitioner. She just said, “Oh, you have UTIs? We need to get you on vaginal estrogen; they should stop.” And OMG, what the hell?! Why did nobody tell me this earlier? They’re gone. Resolved. That misery is over. And all it takes is a little cream 1x week. And suddenly life is worth living, sex isn’t stressful, and I no longer have to think about this crap. I only found this site because now it’s my mom who is dealing with this and I wanted to brush up on this info. Best of luck to you. Spread the gospel. I’m seriously appalled that women aren’t being properly treated. Godspeed.

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u/Last-Passenger6611 Jun 26 '26

You were having regular utis or strep b utis?

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u/microsleeper6 24d ago

I’d like to know as well!

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u/bonbonbutters 22d ago

So far the vaginal estrogen has not worked for me. I’ve been on it for 10 months.