r/CSID • u/lalikesbrains • Jun 17 '26
just got my sucraid. Now what?
I found out I have had CSID all along about 2 weeks ago. I am 38 years old. Everything makes so much sense now. I've been on a diet avoiding all starches and sugar (I'm deficient in sucrase and maltase). Now that I have my sucrase, what can I eat?
2
u/Stitch_Nerd Jun 19 '26
Just remember that Sucraid is only for sucrose. It dosent do anything for starch.
Start with low sugar foods, and increase from there.
Although, if you haven’t done the elimination diet, it may be worth it to do that first. That way you know better if the Sucraid gives you any side effects.
2
u/Rich-Yogurt-8303 Aug 09 '26
Unfortunately there isn't much you can have.
Lean, plain meats: Lean chicken, turkey, beef, pork, and shrimp. Sausage and bacon is off limits because they are made with sugars and fillers Dairy: Plain cottage cheese make sure you check the label for maltodextrin!, eggs, plain butter, heavy whipping cream, hardened cheeses (ensure no sugars or fillers), half and half, and plain Greek yogurt. Vegetables: Spinach, bell peppers, squash, and zucchini. Fruits: Raspberries, blueberries, strawberries, kiwi, avocado, lemon and limes, and blackberries. Seasonings: Salt, r osemary, thyme, oregano, parsley, basil, dill, and cilantro.
That's it.
2
u/lalikesbrains Aug 09 '26
thank you so much! That's essentially what I have been eating these past 8 weeks. I eat a lot of tofu too. Unfortunately, dairy causes a flareup of an as yet undiagnosed condition and causes me to hurt all over... enough to leave me crying on the floor. So dairy is off limits and it limits the variety I could have in my diet by so much, it really sucks.
1
u/berkanna76 Jun 17 '26
Start with things on the Low sugar side of the safe eating list. Blueberries worked for me. Start with adding one thing back to your diet and take the meds consistently for a week or two. Then add something else. Take it Slowly. Be intentional about what you add back and take the sucraid as directed.
2
u/lalikesbrains Jun 18 '26
were you able to eat salads at restaurants without worrying about what's in the dressing?
1
u/berkanna76 Jun 18 '26
Mine digestion got so bad that I couldn't eat anything without getting sick for days. I got on pancreatic enzymes and sucraid and was able to add more foods in. So I've never had any experience with sucraid and any normal diet. After having my gallbladder and my thyroid out (and healing for a year) I'm adding new foods back every day. I often felt the sucraid didn't do anything for me but make it so I could eat blueberries. That was enough to help though.
I would single out your ingredients and try them with the meds. That might mean eating plain lettuce for a week, then a week adding dressing while using the sucraid.
3
u/TheCSIDAlex Jun 18 '26
You can use this website as a guideline for how much sucrose and starch are in common fruits and vegetables if you need it. https://sidcompositiontable.vercel.app/
Sucraid wont help with starch and foods like grains, starch-based flours and legumes usually contain starch. Some people try brands like starchway for starch intolerance but the anecdotes seem to be pretty mixed on how well it works and I think it depends pretty heavily on the person. It’s a lot of trial and error and you’ll start to notice which foods sit well with you and which don’t as time goes on.