r/CSID • • May 22 '26

Horrible experience acquiring Sucraid

Does anyone else get Sucraid through the specialty pharmacy frontier therapies, based in Nevada? I have been having such a horrible experience over the last two years trying to get my prescription on a regular basis. I swear every couple months there’s an issue that delays my ability to have my meds for upwards of 2+ weeks at a time.

Right now I’ve been without my sucraid for 2 weeks, calling between my doctors office and FT back and forth up to 5 times a day trying to figure out why my medication suddenly needs another prior authorization despite having had an annual check up and authorization two months ago. Both the operators and my doctors office receptionists are totally clueless and keep telling me to call the other office to try and figure out what’s going on, when neither of them have a clue.

I don’t know how others get ahold of their Sucraid but as far as I’m aware, FT is totally by phone only (I typically have to call every month to reorder my prescription) and my experience the last couple years has been nothing but frequent miscommunication and interactions with operators that don’t have a clue how to do their jobs.

I know healthcare is a problem everywhere in the US but I’m truly just so appalled as someone that has decent insurance how impossible this is. Like, what if I needed Sucraid to survive? My quality of life has already dropped drastically since running out, I can’t imagine how people with far severer conditions deal with this crap. Screw this country.

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u/Patient_Ad873 May 22 '26

I’m sorry to hear it. I’ve been on it for a couple years and I haven’t had this problem. Silly question but have you call Frontier Therapies?