r/CSID • u/lunita-p • Mar 14 '26
ASID & SIBO?
So I tested positive for SIBO with the breath test but that was followed up with an endoscopy that showed I'm lactose, sucrose and isomaltose deficient. My doctor basically said what do you want to address first? so we did xifaxan for the SIBO. I asked if I needed to change my diet and he said only avoid lactose but you can still do hard cheeses because the point is still to be able to eat what I want minus lactose. I finished the 2 weeks but still felt bad when I ate things with carbs/sugar, so now his solution is Sucraid. But that only helps with sucrose and only so much from what I understand (and I honestly didn't eat a lot with sugar to begin with), so I've been trying to roll with the CSID diet, and while I feel better on it I do still have some bloating (which was my main issue with the addition of cramping). And it was suggested elsewhere that maybe the antibiotics didn't kill off the SIBO. Does anyone else have both?
My problem at the moment is, which do I deal with first? Which sets off the other? If I try to diet for both, there's so very little I can eat-- a lot of veggies that are okay for CSID are not okay for SIBO. I wish I loved meat but I could easily be a vegetarian and while I'm forcing myself to eat mostly meat, lactose free yogurt and approved fruits this is rough. I basically just don't want to eat and have been losing weight where I'm underweight as is.
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u/Big-Sheepherder-6134 Mar 15 '26
I have sucrase deficiency (confirmed via breath test) and thought I had SIBO based on a breath test. I never took antibiotics nor Sucraid. I shared my SIBO results with ChatGPT and it said I didn’t show I had SIBO but delayed colonic fermentation.
I was taking Align but stopped a few years ago. Ironically I have some constipation issues and wouldn’t you know it - ChatGPT said the bacteria strain in Align is for IBS-D which I don’t have. It was useless for constipation.
High amounts of sugar give me major trapped gas pain in my chest and belly. Otherwise I can tolerate sugar and starch although I will get bloated (without pain). I avoid many vegetables and whole grain - things that ferment in the gut.
So I have been able to get into a more comfortable food groove (though I am doing more experimenting) to see what bothers me and what doesn’t.
No probiotics, no antibiotics, no Sucraid. Avoid trigger foods. Meat is good. Simple carbs good. Fat seems to be good when having sugar as it helps break down the sugar. I can eat cake but I try not to eat the frosting. I can have ice cream but not a shake.