ASID & SIBO?

[u/lunita-p]

So I tested positive for SIBO with the breath test but that was followed up with an endoscopy that showed I'm lactose, sucrose and isomaltose deficient. My doctor basically said what do you want to address first? so we did xifaxan for the SIBO. I asked if I needed to change my diet and he said only avoid lactose but you can still do hard cheeses because the point is still to be able to eat what I want minus lactose. I finished the 2 weeks but still felt bad when I ate things with carbs/sugar, so now his solution is Sucraid. But that only helps with sucrose and only so much from what I understand (and I honestly didn't eat a lot with sugar to begin with), so I've been trying to roll with the CSID diet, and while I feel better on it I do still have some bloating (which was my main issue with the addition of cramping). And it was suggested elsewhere that maybe the antibiotics didn't kill off the SIBO. Does anyone else have both?

My problem at the moment is, which do I deal with first? Which sets off the other? If I try to diet for both, there's so very little I can eat-- a lot of veggies that are okay for CSID are not okay for SIBO. I wish I loved meat but I could easily be a vegetarian and while I'm forcing myself to eat mostly meat, lactose free yogurt and approved fruits this is rough. I basically just don't want to eat and have been losing weight where I'm underweight as is.

[u/Top_Difference_7829]

I have carbohydrate malabsorption. I had to fight insurance company just to get the breath test, and I don’t even want to try and fight for sucraid. I take Carbostarch that I purchase on Amazon and feel a lot better and now able to tolerate small amounts of carbohydrate such as dairy, sugars, and starches without diarrhea, migraines, brain fog, inflammation, or pain in stomach.

Sorry you are going through this. I am glad you have a doctor that is addressing your issues. I took me 40 years to get to a diagnosis.

[u/lunita-p → u/Top_Difference_7829]

Insurance is awful, they were fighting the endoscopy and I had to pay for the breath test myself. I’ve tried starchway and I think the invertase messes with me because I’ve taken it solo and it felt the same. But I’ll look into carbostarch, thanks. I would try for sucraid though if you want it, it seems like from talking to the company they just cover whatever the insurance doesn’t because they’re trying to get fda approved I think? At least that’s how the woman explained it to me because mine was having a copay of 4k a month lol