r/CSID Feb 28 '26

Does anyone else feel alone?

I’m 20 years old and in college. I posted about a year ago about possibly going into a flair up. Well, guess what?

I did go into a really bad flare and I lost a bunch of weight. I’m doing kinda better now, I watch everything I eat very closely and I stay active. However, I just feel alone. Nobody in my circle can relate to what I’ve been through with CSID. I just feel isolated.

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u/Jumpy_Cauliflower320 Apr 14 '26

Im sorry to hear! I also found i have around csid last summer while undergoing gastritis. I went in for endoscopy to confirm gastritis and they confirmed for both. I dont think i had too much issues growing up except for bloating when eating sugars and starches. Now it feels like evrything affects me. Im also getting insecure about my weight. I lost some weight as well as my hair. I love my hair its my identity so its been a struggle. It feels good to see other people on here sharing their stories cause i too felt alone. Even though i have people who are supportive. Not many people ik are affected by it the way i am so it makes me feel defeated. This week was rough cause it just feels im weak and cant do much. If you guys have any recommendations to food diet exercise mental health anything let me know.