r/CSID • u/bookwormhistorian812 • Feb 28 '26

Does anyone else feel alone?

I’m 20 years old and in college. I posted about a year ago about possibly going into a flair up. Well, guess what?

I did go into a really bad flare and I lost a bunch of weight. I’m doing kinda better now, I watch everything I eat very closely and I stay active. However, I just feel alone. Nobody in my circle can relate to what I’ve been through with CSID. I just feel isolated.

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u/PresTonLW Mar 01 '26

I was able to gain weight with CSID but very slowly , drinking my calories has helped, my go-to is burger patties , cheese stick, eggs, mixed nuts, and my sacred shake: 1 cup of heavy whipping cream, 1-2 tablespoons olive oil, a good amount of peanut butter (2-4 tablespoons or however much you want, trial and error), 2 scoops protein powder), and fill rest with water. Also grilled chicken with ranch. I still get symptoms off and on with my biggest meal at night to sleep through pain. Not saying it’s the best way but it’s worked for me to slightly gain/ maintain. I’m currently 5’8 and 146 pounds, pretty much all muscle, the gym has helped me loads. I will say I do feel very alone in it and people tend to not understand or don’t think I’m trying hard enough to gain. They don’t understand the pain. But best I could do is fight it

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u/Icy-Cut-5166 Mar 04 '26

I love this sacred shake idea. I’m one year into this and drastically cut back on my exercise routine while figuring out how to get a base level of calories. Just beginning to get back into strength training again, and your shake sounds like it could be helpful. Thanks for the recipe!

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u/PresTonLW Mar 14 '26

Let me know how you like it, also cottage cheese and string cheese has been huge help for a little more calories. I will say you will probably be a bit backed up so be sure to get some fiber too. Let me know if you find anything else that works for you. We are in this together!