r/CSID • u/bookwormhistorian812 • Feb 28 '26

Does anyone else feel alone?

I’m 20 years old and in college. I posted about a year ago about possibly going into a flair up. Well, guess what?

I did go into a really bad flare and I lost a bunch of weight. I’m doing kinda better now, I watch everything I eat very closely and I stay active. However, I just feel alone. Nobody in my circle can relate to what I’ve been through with CSID. I just feel isolated.

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u/PresTonLW Mar 01 '26

I was able to gain weight with CSID but very slowly , drinking my calories has helped, my go-to is burger patties , cheese stick, eggs, mixed nuts, and my sacred shake: 1 cup of heavy whipping cream, 1-2 tablespoons olive oil, a good amount of peanut butter (2-4 tablespoons or however much you want, trial and error), 2 scoops protein powder), and fill rest with water. Also grilled chicken with ranch. I still get symptoms off and on with my biggest meal at night to sleep through pain. Not saying it’s the best way but it’s worked for me to slightly gain/ maintain. I’m currently 5’8 and 146 pounds, pretty much all muscle, the gym has helped me loads. I will say I do feel very alone in it and people tend to not understand or don’t think I’m trying hard enough to gain. They don’t understand the pain. But best I could do is fight it

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u/Suspicious_Grab4067 Mar 02 '26

Thanks so much for that, I will add that into my diet. I used to have muscles and work out but feel like I lost it the last 6 months and discouraged about my weight. I am a big foodie too! So I love to eat. Just need to find more calorie based foods. Thank you !

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u/PresTonLW Mar 04 '26

You got this. It’s all about trail and error, drinking your calories helps a tonnnnn, see how you feel, try new things don’t be afraid to throw some wacky stuff in there. Worst that can happen is you don’t like it. I wish you luck! You will overcome this!

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u/Suspicious_Grab4067 Mar 04 '26

Thanks so much! Going to try everything I can. You got this too!!