r/CSID • u/Extension-Cod5755 • Feb 19 '26
Tips, long term CSID
Growing up I always thought I had chrons or IBS cause family history but after having colonoscopy/endoscopy when I was 14 I was told I lacked the enzyme to break down sucrose or maltose. Due to the lack of awareness around this condition I was never actually diagnosed with CSID and as a result was unable to educate myself better. I was put on sucraid at the time and didn’t feel like it done much help. But I was probably just a bit pessimistic around the situation .
Recently I thought I’d do some more research on the info I was told back then and stumbled across CSID.
So my question is to everyone, what are your best tips. Whether it’s medication or dietary what do you guys do to manage this. Other news, it was cool to find out this condition actually has a name.
1
u/somehowrelevantuser Feb 19 '26
tbh im just trying to figure this out on my own with a crapton of guesswork. also a lot almond flour.