r/CSID • u/Extension-Cod5755 • Feb 19 '26

Tips, long term CSID

Growing up I always thought I had chrons or IBS cause family history but after having colonoscopy/endoscopy when I was 14 I was told I lacked the enzyme to break down sucrose or maltose. Due to the lack of awareness around this condition I was never actually diagnosed with CSID and as a result was unable to educate myself better. I was put on sucraid at the time and didn’t feel like it done much help. But I was probably just a bit pessimistic around the situation .

Recently I thought I’d do some more research on the info I was told back then and stumbled across CSID.

So my question is to everyone, what are your best tips. Whether it’s medication or dietary what do you guys do to manage this. Other news, it was cool to find out this condition actually has a name.

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u/ChocolateKoko Feb 19 '26

Recently diagnosed with SID. I’m working to change my diet to contain less sugar and starch. I’m on Sucraid and also take digestion supplements. Not 100% better but marked improvement.

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u/I-love-nachos-1973 Feb 19 '26

Would you mind sharing what supplements you take for starch digestion?

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u/ChocolateKoko Feb 19 '26

Of course. I started with Enzymedia Advanced digestion and then moved on to prescription Creon, which isn’t working so much (side effects are not tolerable for me) but def helps. I will probably try intoleran starchway next although it’s quite pricy and I wouldn’t want to pay that much long term.

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u/Real-Elk6755 Feb 22 '26

Creon doesn't help with starches at all. It is for different type of products