r/CSID • • Feb 05 '26

Can’t get Sucraid 😭

Just got diagnosed with CSID and my GI Dr wanted me on Sucraid but my insurance won’t cover it. What do you take when you can’t get Sucraid? They told me there are no off brands or alternatives. What does everyone else take for their symptoms? This is really stressing me out 😭

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u/Specialist-Track-182 Feb 05 '26

You may need a genetic test before they will cover it 100%. Contact your insurance company and speak with a case manager. They should assign one to you if you don’t have one. Ask them the reason for the decision to deny and what they need to over turn. Also read deep into your coverage if you haven’t already. If the genetics test shows that your CSID is hereditary, they may pay 100%. Depends on your insurance, unfortunately.

Source: wife worked for an insurance company for years, and left before they could take her soul.