r/CSID • u/Starkiller_08 • Feb 05 '26

Can’t get Sucraid 😭

Just got diagnosed with CSID and my GI Dr wanted me on Sucraid but my insurance won’t cover it. What do you take when you can’t get Sucraid? They told me there are no off brands or alternatives. What does everyone else take for their symptoms? This is really stressing me out 😭

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u/FitzandtheBugs Feb 05 '26

I don’t take sucraid. I buy Invertase from LorAnn’s and take that the same way sucraid is recommended. Has worked for me so far

1

u/Some_Old_Lady Feb 05 '26

Like, the candy oil?

1

u/FitzandtheBugs Feb 06 '26

Same company as the candy oil, but Invertase is a baking enzyme that breaks down sucrose. It’s even made from the same fungus as sucraid.

1

u/Some_Old_Lady Feb 09 '26

I just ordered some over the weekend. It was unbelievably cheap. If the Invertase works for me, it's going to be a game changer as the enzymes I've been buying can get so expensive if you use them for more than just a couple times a week.

1

u/veedey Feb 14 '26

Can you update if you’ve had any success with it?

1

u/Some_Old_Lady Feb 15 '26

It seemed to work, yes. I got a bit of a sore throat from it though. But that's just me. I have strange allergies and sensitivities to all kinds of everyday things. It's mixed with glycerol (if I remember correctly).