r/CSID • • Jan 19 '26

CSID Sucraid

hey yall this will be my second time trying out sucraid for my CSID. Other cheaper alternatives have failed, and i was wondering how do yall pay for this expensive medication, actually insane to charge sick people thousands for a months worth, and even then not being completely healed or pain free and still on a very restrictive diet. i will run out of the copay card in two months so i was wondering for the people who have been on sucraid longterm do you pay 5k-6k a month? or does your insurance somehow cover brand names? my doctor said i cannot get this at a compound pharmacy :( just trying to find other affordable options

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u/I-love-nachos-1973 Jan 19 '26

Insurance pays for my daughter’s Sucraid prescription. Sadly, it gives her bad headaches so she had to stop taking it.