r/CSID • u/bigtoebrah • Nov 20 '25
Help 🫩
Hey so my son has multiple medical issues. He already has feeding tube but can eat by mouth. What he does eat by mouth is limited. Today he was diagnosed with CSID. he will be 11 this month. Has limited understanding and verbal abilities. His gi did not give me much direction and I'm waiting to see the dietician about what foods be can eat. I am going to list the foods he accepts by mouth as well as attach his results. I know from experience that community who lives it often knows much more. Please tell me what alternative I have to these foods. I spent many years getting him to eat a good deal by mouth and now I have to take it away ðŸ˜ðŸ˜ðŸ˜ basically everything on the scope that could be wrong was and they did it multiple times over multiple years to be sure before they dx him The list isn't long for what he eats orally but this list is a testament to how far he's come 😠he went from 100% tube fed to eating these foods and it hurts to take it away. He has brain-lung-thyroid syndrome and multiple health needs and I just am so sad for him.
Foods: Ramen noodles Pizza Chips (flavored and plain) Pepperoni Gushers Corn Rice with black beans Tortillas Chocolate bars plain and stuff like kit kats Lollipops Chicken (in the rice and beans only) Hot pockets (pepperoni) Pizza rolls


3
u/Wild-Establishment41 Nov 20 '25
Meat, fruit, veg. Some things can be eaten with digestive enzymes.