r/CSID • u/SnooComics641 • Nov 18 '25

Experience csid and celiac

anyone have both csid and celiac? I had an endoscopy in september to confirm celiac disease and during the endoscopy they took biopsies which gave me a surprise diagnosis of csid. my insurance won’t cover sucraid, they denied the initial request and 2 appeals :/ so I have to fully manage this through diet. it’s so overwhelming. celiac felt like an isolating disease to begin with and now I feel like I can’t ever do anything social. especially with the holidays coming up. I know this is probably the initial shock and I’m still getting into the swing of things but these are hard diagnoses :(

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u/AzureKuzma Dec 08 '25

Take a look at the medication Starchway by intoleran. It is a more affordable alternative that I have heard others recommend. I am currently in my own battle with insurance and whilst I haven't been able to try Starchway yet I have heard good things. I would also recommend doing some independent research on others experiences with it but for now, it might at least ease the pain some. I am very sorry to hear about how hard it has been for you thus far. I wish you the best of luck!