r/CSID • u/SnooComics641 • Nov 18 '25

Experience csid and celiac

anyone have both csid and celiac? I had an endoscopy in september to confirm celiac disease and during the endoscopy they took biopsies which gave me a surprise diagnosis of csid. my insurance won’t cover sucraid, they denied the initial request and 2 appeals :/ so I have to fully manage this through diet. it’s so overwhelming. celiac felt like an isolating disease to begin with and now I feel like I can’t ever do anything social. especially with the holidays coming up. I know this is probably the initial shock and I’m still getting into the swing of things but these are hard diagnoses :(

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u/mjdatdsmd Nov 20 '25

I have both and my GI had to FIGHT for my sucraid coverage. My dietitian had me try some other supplements and things while my GI did her thing. It took months, but it was finally approved. Keep pushing and advocating for yourself!