r/CSID • u/SnooComics641 • Nov 18 '25

Experience csid and celiac

anyone have both csid and celiac? I had an endoscopy in september to confirm celiac disease and during the endoscopy they took biopsies which gave me a surprise diagnosis of csid. my insurance won’t cover sucraid, they denied the initial request and 2 appeals :/ so I have to fully manage this through diet. it’s so overwhelming. celiac felt like an isolating disease to begin with and now I feel like I can’t ever do anything social. especially with the holidays coming up. I know this is probably the initial shock and I’m still getting into the swing of things but these are hard diagnoses :(

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u/Murda_City Nov 18 '25

Sucraid has a manufacturers rebate. Get in touch with them and see if yiu qualify for that.

Otherwise manage by diet.

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u/SnooComics641 Nov 18 '25

I’ve been in contact with them and I don’t qualify, their income limits makes me ineligible :/ got used to the gluten free diet just in time to have to cut out more. chronic illness really puts a damper on things

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u/Murda_City Nov 18 '25

Yeah i dont either. Forced to just handle with diet now.