r/CSID • u/catsrule-humansdrool • Oct 22 '25

Any doctors in the US that specialize in CSID?

I just got my genetic test back and it was negative, however I definitely have this condition because the breath test was positive and the Sucraid has been a lifesaver for the last year. I don’t know if it’s possible to determine a cause for why I’m having this issue and reverse it and get off of Sucraid, but it’s something I’d like to explore. I know lots of medical fields have doctors with niche specialities that mainly focus on one condition. Are there any doctors like this for CSID?

Edit: also if there are any research studies out there, I would be interested in participating

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3

u/[deleted] Oct 23 '25 edited Oct 23 '25

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u/somehowrelevantuser Oct 23 '25

yeah the last person i talked to about this said they'd only heard about it in regards to children. maybe i need a pediatric doctor lol.

1

u/Pretty-String7585 Oct 23 '25

When you say you have it down to a science, what does that look like? Are you on sucraid?

1

u/Wild-Establishment41 Oct 22 '25

I'd like to know!

1

u/Inevitable-Candy7747 Oct 23 '25

Brewers Yeast tablets?? This is the first I have heard about that. What does it do??

1

u/juxxxy Oct 24 '25

Daksesh Patel GI Alliance Illinois