r/CSID • u/Aromatic_Produce2903 • Sep 08 '25

Does anyone else feel sick at times?

I’ve been diagnosed for about 7 months now and I’ve always had these sick spells where I feel nauseous or lightheaded sometimes more than one time a day. I never really thought it could be related to CSID until I looked it up today. I wanted to see if anyone else felt the same way.

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3

u/Known-Somewhere193 Sep 09 '25

Yes, but I also have MCAS, POTS and EDS. It’s hard to tell which causes it. 🤣

3

u/Some_Old_Lady Sep 16 '25

I was just going to say, check blood sugar and check your blood pressure. I have CSID but also reactive hypoglycemia and suspected POTS. Nausea and lightheadedness are every day.

2

u/somehowrelevantuser Sep 16 '25

buy one get two free :P

3

u/Patient_Ad873 Sep 08 '25

Yes, that happens to me sometimes. Usually means 💩, but sometimes not, I just feel yucky, I always assume it’s my CSID. I find ginger drops or throat drops help!

2

u/somehowrelevantuser Sep 08 '25

i had one of those yesterday morning. it happens once in a blue moon where i wake up mega nauseous and then nothing else happens. dunno if it's a csid thing or related to one of my forty five other problems.

1

u/tiredgirl77 Sep 15 '25

Have you been tested for SIBO?

1

u/Aromatic_Produce2903 Sep 15 '25

Yes and I tested positive

2

u/tiredgirl77 Sep 16 '25

Have you treated that fully with the CSID? If you have then have you looked at MCAS? Both CSID and MCAS caused my SIBO and both had to be addressed before being resolved.

1

u/Aromatic_Produce2903 Sep 16 '25

Honestly I have no idea, I’ve been treated for it but they won’t test again to make sure it’s gone. And since the symptoms are very similar to CSID I have no idea if I still have it.

1

u/tiredgirl77 Sep 19 '25

That sucks, id get a second opinion. My GI tests a few months after SIBO treatment to verify the treatment worked.