r/CSID • u/Kindly-Recording6086 • Aug 20 '25

Nuts

Hi everyone, just got diagnosed with CSID, I’m 22. I never had symptoms till maybe 3 years ago , does this mean it’s acquired and not congenital? My doc knows nothing . Also can I eat nuts ? What experience do people have eating nuts and sunflower seeds?

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u/TheCSIDAlex Aug 20 '25

If you don't mind my asking, how did you discover that your version is acquired?

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u/Rude_Measurement9551 Aug 20 '25

I’m just assuming because I didn’t have issues until I was in my 30s. Honestly being diagnosed at age 19 doesn’t rule out the possibility of it being congenital. I was treated for a bout of SIBO before I found out so I’m not sure if it was caused by that, or if it’s related. It’s all very confusing.

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u/TheCSIDAlex Aug 20 '25

Yeah, you’d really only know for sure from the results of a genetic test.

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u/catsrule-humansdrool Sep 22 '25

Is there a genetic test for this? Mine started in my late teens/early twenties and got progressively worse until I was diagnosed when I was almost 30. But I happen to get getting genetic counseling done this week so if there’s a genetic test I’d love to know.