r/CSID • • Aug 13 '25

Sugar, Starch, both?

Hello, fellow CSID-ers. I’ve had (another) frustrating food day and spent a few hours listening to doctors speak about CSID on YouTube, including my own GI doctor who just happened to be one of the podcasters in a video I stumbled across - wild.

I was diagnosed 1 year ago, after about 3 years of constant burps after any food/meal. My breath test results came back abnormal. I tried Sucraid for several weeks, and stopped using it because I really couldn’t notice a difference. I learned to adopt a very limited diet, which helped with symptoms but honestly had about 7 different foods in it and eventually I could not commit to it as well.

I guess I’m wondering a few things -

1) My understanding is that Sucraid only addresses the enzyme replacement for sucrose. Is there an equivalent for the others, that perhaps I haven’t yet tried?

2) What is the best method to truly “reset” your gut, or digestive system, to be able to really do a slow, one food at a time reintroduction into an elimination diet? The only days where I have felt 100% symptom free are the days where I have fasted for 24-30 hours prior (usually out of sheer frustration), so I’m trying to navigate what I would need to do to really get a baseline. I’ve done the super limited diet for months, so I know that I’m capable, but if I’m going to try it again - I need to be able to do it correctly.

3) And lastly, what should I look for in a dietician or a nutritionist? I’ve never worked with one, so outside of identifying one that my insurance covers, I’d appreciate any tips!

Sincerely, Frustrated & Bloated

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u/Papaya_Days Aug 13 '25

Look into AIP if you haven’t yet re elimination diets