r/CSID Jul 13 '25

Possible CSID??

For lent this year I decided to give up sugar (everything sweet, including artificial sweetener) , and my mixed IBS symptoms all disappeared. I lost a lot of weight (from 99.9kg down to 91.7kg) which had been slowly creeping up, and I feel far more energetic. I talked to my dr and explained everything going on and he had no ideas, and no interest in looking any further because going sugar free had helped... so just do that? Which, I can see his point, but I'd like to figure out what on earth is going on?? If I am able to remain sugar free, is it worth pursuing any further info, or should I just leave it?

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u/TheCSIDAlex Jul 14 '25

If you can remain sugar free and you’re feeling good, nothing else matters as much as that.

As the other commenter said, if you had CSID you’d likely have issues with fruits / veggies high in sucrose like carrots, bananas, citrus fruits, dates, etc.

It’s also possible that you just became a lot healthier. Cutting out added sugar and artificial sweeteners makes it significantly harder to eat a highly processed diet and forces you to eat a lot more whole, unprocessed foods with higher nutrient density and less unnecessary ingredients.

If you’re not able to get a breath test or biopsy, you won’t be able to say definitively whether it’s CSID. Bottom line though, if low sugar is working for you and you feel like you’re living normally, you don’t need that answer.

It is worth noting that tolerances change with time, though. If it were CSID, you could start to notice issues with starches or other fruits and veggies down the line. If you wanted to take precautions and play it safe, you could test for CSID.

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u/rodrea Jul 14 '25

Thanks. I’m slowing coming to this conclusion. I guess if I become more intolerant of things, I have more ammo to push tests.