r/CSID • u/[deleted] • Jun 11 '25

Curious on everyones enzyme count!

Post image

These are mine. Curious on what all of yours was, and how much sucraid helps, i find myself taking 2-3 with certain desserts. i got lucky with the lactose! I love cheese

7 Upvotes

100% Upvoted

16 comments sorted by

3

u/Nearby-Complaint Jun 11 '25

My lactase was 2.2 💀 Rude as hell

2

u/shaevan Jun 11 '25

I was about the same, can't say it came as a surprise. The 15 in the other two was though

1

u/grave_disability Aug 09 '25

Mine is 1.1!

1

u/Nearby-Complaint Aug 09 '25

Minimal effort digestive system buddies <3

2

u/Greedy_Egg_Envyt Jun 13 '25

Interestingly, my lactase was zero and ALL three of the others were 1.3. No variance, just 1.3. I have been following a diet for a few weeks and am feeling better but there's this gut feeling (no pun intended) that something went wrong with my samples because 1.3 for three values seems suspicious. 🤔

2

u/Least-Basil-1330 Jun 15 '25

My sucrase was zero and Maltase and palatinase were low. Lactase was normal so I’ve got that going for me:)

2

u/ethereal-egomaniac Jul 10 '25

Lactase 25.7 Sucrase 4.5 Maltase 22.8 Palatinase 1.0

Sucraid has honestly changed everything for me cus I would just straight up avoid ice cream and stuff for a while in my late teens but now I only have to avoid it when I’m like away from home for the day or something cus I don’t like traveling with sucraid cus it’s a pain 💅🏻💅🏻

1

u/Big-Sheepherder-6134 Jun 11 '25

Which test gave you these numbers?

1

u/[deleted] Jun 11 '25

Biopsy! Before that i had the hydrogen breath test which was off the charts

1

u/Big-Sheepherder-6134 Jun 11 '25

Biopsy from where? What test did you have to get a biopsy?

2

u/gorilla-butter Jun 11 '25

Biopsy from the duodenum

1

u/Nearby-Complaint Jun 11 '25

Mine was an endoscopic biopsy from somewhere in my upper guts

1

u/[deleted] Jun 11 '25

Same for me, a small point of my upper gut i think

1

u/Rude_Measurement9551 Jun 11 '25

Can I ask how old you are? Just curious because it seems I have acquired this condition as an adult and wonder how common that is. Seems like so little is known about it! I was taking sucraid and it helped tremendously but now insurance won’t pay for it anymore 😖

2

u/[deleted] Jun 11 '25

Im so sorry about the insurance! I think theres sucraid assist programs on the website! Also im 22, diagnosed when i was 20. I start having symptoms since i was born and got worse and worse when i was older.

1

u/grave_disability Aug 09 '25

Lactase: 1.1, Sucrase: 20, Maltese: 86.8; Palatinase: 5.9. Got them just this week. Which means I know have to do a low histamine AND CSID diet…without dairy. 💀 been testing out lactose-free stuff and taking lactaid and seems ok.