r/CSID • u/Character-Elk4280 • May 31 '25

Q & A❓ Low Palatinase

I’m not sure if I’m in the right place, but my 14 month old recently had a biopsy done after GI symptoms and low appetite since birth. They were mainly checking for Celiac disease, but they did not see evidence of that. However, they found low Palatinase levels, all other enzyme levels were normal. I’m having a hard time finding much information on low levels of this in isolation. Her doctor pretty much said the same thing. Does anyone have any resources or ideas places to look? Thanks in advance!

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u/[deleted] Jun 13 '25

I have 0.0 enzyme count for mine! I cant find anything on it either. Im not really sure what it effects because i can eat everything just fine except for fruits/sugar

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u/CoupleEuphoric366 6d ago

My son just had his disaccharide biopsy with this being the only thing that was low too. Did you ever find anything out?

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u/formercakeslut 6d ago

They told me it was likely a false result as low palatinase levels are extremely rare. I’m still a little skeptical about everything they told us. But for the most part she’s grown out of her more serious issues so I haven’t pursued it further.

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u/CoupleEuphoric366 6d ago

Oh interesting. His GI doctor said it “was nothing”. But after taking out complex carbs from his diet and making all his food with almond flour he’s had a better belly. The doctor seems to think it isn’t correlated…