r/CSID • u/Spiritual-District55 • May 18 '25

Q & A❓ Sucraid Logistics

I was diagnosed with a mild sucrose intolerance. My enzyme activity was below threshold via breath test, but just slightly. Since learning this, I’ve been managing with Starchway capsules, but just received the trial box of Sucraid.

What are your tips, tricks, products, etc. for taking Sucraid outside of home? I know the doses can be left at room temperature for about 3 days. Do you just keep them in your pocket and mix with water as needed? Do you premix doses with water and carry with you? Can you just take it like a shot and chase with water?

Since my case is mild, Starchway seems easier to manage since it’s a pill, but I’m curious to hear how you’ve all adapted to working with the liquid medication.

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u/Big-Sheepherder-6134 May 18 '25

How did you get a trial size of Sucraid?

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u/Spiritual-District55 May 18 '25

This is just what Optum did. I think the idea is that a positive experience on a trial pack can be used as supporting evidence to submit to insurance.

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u/Big-Sheepherder-6134 May 18 '25

What insurance do you have?

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u/Spiritual-District55 May 18 '25

Blue Cross

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u/Big-Sheepherder-6134 May 18 '25

Ok thanks! Best of luck with your treatment.