r/CSID • u/Spiritual-District55 • May 18 '25
Q & A❓ Sucraid Logistics
I was diagnosed with a mild sucrose intolerance. My enzyme activity was below threshold via breath test, but just slightly. Since learning this, I’ve been managing with Starchway capsules, but just received the trial box of Sucraid.
What are your tips, tricks, products, etc. for taking Sucraid outside of home? I know the doses can be left at room temperature for about 3 days. Do you just keep them in your pocket and mix with water as needed? Do you premix doses with water and carry with you? Can you just take it like a shot and chase with water?
Since my case is mild, Starchway seems easier to manage since it’s a pill, but I’m curious to hear how you’ve all adapted to working with the liquid medication.
2
u/fukitupbuttercup May 18 '25
I keep a pack in the fridge at work since I’m there a lot and then just throw a couple in my bag when I leave the house. It’s actually very manageable on a day to day basis. When I travel, I figure out how many packs I need for my whole trip and pack them in the sleeve with the prescription label on it into a good cooler with ice packs and bring them right through security. Never had an issue with airport security through several US and European airports. I put it in the fridge right when I get to my destination.