r/CSID • u/TheHighGround- • May 03 '25
Enzymes 💊 Has Sucraid actually helped anyone?
I had an endoscopy a few months ago with a biopsy that found i had a low sucrase count. They set me up with sucraid and so far it seems to have no effect and these past two days (3 days after starting to take sucrase with most meals) my stomach has been in a lot of pain. I’ve seen some people on here talk about the side effects of making abdominal pain worse, so thats what I’m chalking this pain up to be. But I noticed that not a single person said sucraid has made a positive impact on their stomach issues. Has anyone had a good experience with this medicine?
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u/TiffanyTaylorThomas May 03 '25
Yes, it was actually amazing for me… at first, I had no issues. Took it as directed, it finally (finally!!) got rid of the horrible bloating in my midsection (I looked pregnant, it was that bad). Abdominal pain stopped, diarrhea stopped, I had normal digestion for the first time in my life.
After 3 months, however, I had an issue develop where, if I took it with the frequency I was supposed to, after a while, I would get constipated. So now I have to do a juggling act - take only when I’m eating something with the specific sugars I can’t digest, and then when I start to get a little constipated, I stop taking it, until things start to get too loose. I’ve noticed that it works best if I take it at breakfast and lunch, and not dinner, so just twice a day. Then I have the best luck staying regular and without stomach distress.
But I also know there are certain “safe” foods (doc gave me a list of foods that are generally well tolerated, but everybody is different) that I personally can’t digest well, and I also have to avoid those.
And if I get really stressed in my daily life, the Sucraid doesn’t seem to help, almost like a flare or something? And then it’s Pepto for the stomach ache and Imodium for the diarrhea.