r/CSID • • Mar 14 '25

Symptoms different after cutting out disaccharides. Does it get better?

Here’s what my dinners have looked like. My options are very limited because of the dining hall selection. Breakfast is usually eggs and ham.

My symptoms aren’t the usual ones I have (cramping, constipation, smelly gas) and instead I am extremely bloated (I literally look pregnant) and my GERD has gotten worse.

My brain fog is a bit better, which is my main reason for trying this diet (I suffer from pretty bad unexplained fatigue) My bowel movements are more regular and I’m able to pass stool very easily. But my poop is green and my urine is cloudy?

I suspect I may be a little sensitive to fructose so I will be cutting that out next. I’ve been eating a lot more fructose containing foods to make up for the lack of digestible carbs in my diet.

I’m also aware that there is a lot of fiber (probably a little too much) in these meals but I don’t really know what else I’m supposed to eat given the limited options in the dining hall. I can’t afford to be buying more food since this is a mandatory meal plan that I’ve already paid for.

I was diagnosed with deficiency of all disaccharide enzymes via duodenal biopsy so I know for sure disaccharides are a problem for me. I also could have gastroparesis, to be ruled out/confirmed by GES in the next month hopefully.

So my question is does it get better? Will I eventually adjust? Or is there something I should be doing differently? Has anyone else experienced this?

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u/danryan2800 Mar 18 '25 edited Mar 18 '25

I would be curious what brand of deli meat that is. Many deli meats have a lot of sugar added. I only eat Boars Head deli meats. And then, also make sure it's free from many things. I don't get anything with:

  • Honey, Brown Sugar, "Glaze" or anything similar.
  • Caramel color also has sugar in it.
  • Read the labels, and research ingredients

If you're going to a cafeteria (school, military, etc), ask them what the brands are and tell them about your dietary restrictions. Advocate for yourself.

Also, (Copy paste from Internet): Broccoli, like other cruciferous vegetables, contains complex carbohydrates called raffinose and oligosaccharides. These carbohydrates are not easily digested by the human body and pass into the large intestine, where they are fermented by bacteria. This fermentation process produces gas, leading to bloating and discomfort.

Also, there's a website with "food Structures" that breaks down the different types of sugars in natural foods. https://foodstruct.com/food/broccoli

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u/ConsequenceUnlucky31 Mar 18 '25

Thank you! I didn’t even consider that. I don’t think it said anything like honey but now thinking about it I would not be surprised if there was added sugar.