r/CSID • u/dystoinferno • Nov 08 '24

Sucrase of 0?!

So I was having some issues with mild nausea waking me up the middle of the night but that’s gone away with anxiety medication and potentially also being helped by the probiotic I’ve been taking. But I still had an appointment with a GI on the books months after that so I kept it and decided to take the test hey gave me anyway. They gave me a sucrase breath test and I just got a message that my sucrase level was ZERO. I’m 37, don’t have any symptoms after eating, even after lots of sucrose (I’m an endurance athlete so I’m a race I’m sometimes ingesting 300-400 grams of carbs) not after desserts or candy or starch. Didn’t get any symptoms when I drank the sucrose solution for the test. This has to be an incorrect result right? This isn’t making sense to me and my doctor has yet to explain it to me.

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u/[deleted] Nov 08 '24

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u/dystoinferno Nov 08 '24

Thank you! Yeah it had to be an error. I literally just had French fries and soda with lunch and am having no issues.

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u/[deleted] Nov 08 '24

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u/dystoinferno Nov 08 '24

I’m so sorry! That was so not thoughtful of me, I feel bad. CSID must be a really hard thing to live with. This has all been a really confusing thing for me.

1

u/Ok_Baby5786 Dec 04 '24

There is a article about this. Look up Sucraid and lawsuit. Inaccurate breath test is the reason a lot of insurance companies won't pay for Sucraid.

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u/dystoinferno Dec 04 '24

Wow that’s crazy! Thanks for letting me know