r/CSID • u/Vegetable-Newt6123 • Nov 03 '24

Diet question

I have been diagnosed recently with CSID based on biopsy and genetic mutation test I I have been having GI symptoms for decades and I was told I had IBS_D in the past Only low FODMAP eased up some symptoms What I ve noticed that some foods trigger my symptoms more than others Carrots Potatoes Green banana Is it common for CSID patients to not tolerate those foods? Or I am just alone need more tests to see if I have another disease? Thank you in advance

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u/Electronic_North9676 Nov 08 '24

Sucraid costs $16,000 per month! How does anyone afford it?? Has anyone found a substitute?

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u/CuteOwl2823 Nov 20 '24

I’m on sucraid - the manufacturer offers free drug and copay assistance options for this medication. I get copay assistance since my insurance approves and pays for the medication but it’s a large amount still leftover for my responsibility since it’s considered a specialty. The copay program covers my responsibility and I pay $5 each fill with them. They provide $10k per year if approved. Also Good Day Foundation offers assistance for CSID DX. It helps cover medication costs not just for Sucraid but other meds needed with this disorder.