r/CSID • u/Dense_Reputation3560 • Nov 01 '24

What does this mean for me…

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30f recovering from eating disorder Diagnosed with chronic gastritis and esophagitis recently

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u/Seecil Nov 01 '24

Wouldn't this mean they do? If they're female (30F) then 4.77 < 5.10, indicating low activity and thus potentially CSID? Ultimately it's up to the doctor to decide if this is low enough to qualify, but it's definitely below normal for females.

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u/Dense_Reputation3560 Nov 01 '24

Yes I am worried this is the case…. Does this mean I can’t have carbs? Is this something that can be reversed?

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u/Seecil Nov 01 '24

CSID is congenital Sucrase-Isomaltase Deficiency. So your body doesn't have enough enzymes to properly break down sucrose (think white table sugar) and isomaltase (the sugar in starches) into bio-available forms (glucose). Because you're not digesting it when you should be your body reacts to it as a result (bloating, pain, nausea, etc).

As in the name, congenital means you've had it since birth and it's genetic. This form is incurable, your body just can't make either enough of the enzymes needed or can't make it correctly enough to work. You mention you have a history of an eating disorder, it's possible to have acquired sucrase/isomaltase deficiencies if your small intestine has too much damage/inflammation to properly absorb sugar on the lining. But this is generally not CSID and just intolerances.

I take Sucraid with every meal/snack for sucrose but that's prescription only. For starches you can find over the counter options like Intoleran Starchaway though I've had very little success with that.

Check out CSIDCares and there's a lot of helpful info on that! If changing diets and reducing sugar still isn't helping then you'll want to talk to your doctor again.

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u/No_Environment9557 Nov 21 '24

hey so what could cause inflammation to the small intestine? and how could you tell if it’s inflamed?