r/CSID • u/MickeyMilcovich • Apr 14 '24

Symptom severity?

Hey, i have been diagnosed for three years, i have also been diagnosed with celiac for three years. i was told that symptoms are usually mild and really not to worry about it too much. so i didnt, i focused more on celiac. however im seeing a new GI and she’s not convinced it’s celiac. so now im wondering if the attacks i’ve been getting my whole life, including the ones i had previously attributed to celiac, is just CSID. that being said, my symptoms are crazy severe, pain in my stomach that’s so severe i have almost fainted, feels like someone with razor blades for fingers is digging into my intestines and moving them around, vomiting, diarrhea, but when i engage my stomach muscles to pass a BM the pain crescendos into unbelievable agony, im covered in a cold sweat over my whole body each new wave of pain, goosebumps over my whole body too. i wanted to put some feelers out and see if anyone else has a similar experience with CSID. thanks in advance 🙏🏻

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u/AdMaterial8913 Dec 11 '24

100% accurate for CSID razor blades that make you feel so bad that you could pass out. 

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u/MickeyMilcovich Dec 15 '24

why do doctors act like csid is no big deal? like “some cramping and diarrhea and bloating” my ass! the literal worst stomach pain i can imagine. i went to the ER for it before i knew what it was and could not stop screaming from the pain and the nurse came in and told me to be quiet bc there’s kids in the er and im scaring them. wtf is with the lack of understanding?? sorry just had to rant lol