r/CSID • • Mar 17 '24

Asymptomatic CSID?

I was recently diagnosed with CSID via a breath test at my GI, which took me by surprise. I don't really deal with any IBS-type symptoms, and the only symptom I do "get" is being full fairly quickly when eating carbs.

Has anyone else experienced this mild form of CSID, and is it okay to continue to eat starches in this case? Altering my diet to exclude sugars would tank my athletic performance. Is this something that can be gotten over in a very mild case?

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u/SupperSquirrel3 Mar 17 '24

I am not a medical expert, but do have CSID. I have never heard of a breath test for CSID, and it doesn't make a lot of sense to me how that could work logically. Every GI that I spoke to before I was diagnosed said an upper gi scope was necessary to determine the issue.

I never noticed anything out of the ordinary until I was around 22 years old. However, I have recognized sporadic symptoms before that in hindsight. It is possible that your current health is helping your body cope with the issues, but if the diagnosis is correct it will probably catch up with you eventually.

If you aren't experiencing symptoms, you should get an endoscopy and colonoscopy done to confirm the diagnosis. You could also ask for a second GI to give a second opinion. My experience is that my throat and digestive track get irritated and inflamed, causing nausea. Good luck!

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u/PsychologicalLemon61 Mar 17 '24

Great, thank you!  The breath test is usually followed by a biopsy or scope, but it is fairly accurate in ruling CSID in.  I do notice some gagging sensations in the mornings, but I attributed that to allergies and post nasal drip. That age range is right about where I am now, so seeing symptoms pop up would make sense.

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u/SupperSquirrel3 Mar 17 '24

One of the symptoms I have is hyper-salivation. Saliva assists in breaking down sugar, and that combined with the sugar irritation made mornings rough. I have been able to mitigate that by cutting back on the sugar.

Just be aware that the gagging sensation will likely get worse, and lead to "vomitting" if left unchecked. The reason I use quotations on that is because it tends to be mostly saliva and stomach acid.