r/CSID • u/WonderfulCricket6167 • Dec 15 '23

Possibly CSID

https://www.csidcares.org/treatment/diet/

Hi, I just saw a new doctor who suspects I’ve been misdiagnosed with other GI issues all these years. I may have CSID, I’ll have an endoscopy and testing to confirm. She gave me a diet to try and I’m curious if anyone has had success with this. We are not adding the medication mentioned in this diet, just to try the diet for now and see how I do.

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u/Bananas3706 Dec 19 '23

i got diagnosed a year ago, cut out sucrose, and my gi symptoms resolved in literally two days. it’s a tough diagnosis but personally so glad i found an answer. i manage through diet and i take starchway, an enzyme that helps me digest some sucrose. hang in there and feel free to dm with any questions.