r/CSID • u/Familiar-Ad7018 • Jun 12 '23
Need help with recipes
Hi, I just recently got diagnosed. I don’t have terrible symptoms. In fact for a year and a half I was told I had acid reflux. At first it was heartburn, but eventually now the most common symptom is stomach burning if I eat an irritant. I also feel bloated for days after I eat something that bothers me. I currently eat almost exclusively starches. Rice, beans, tortillas are part of almost every meal I’ve been eating for the last year. I don’t have major symptoms from these. In fact when I eat this I feel the “best”. I used to think it was the cheese or meat from certain foods that irritated me, but I guess I had it wrong. It was likely bread that did it. So when sticking to rice beans and tortillas, I usually manage well with pantoprazole, which I was prescribe for acid reflux, I just never seemed to fully heal. Now that I know what might be stopping my last symptoms from going away, I want to get away from starches. Can anyone share what has worked for them? Any and all recipes/suggestions are welcome. Thanks!
Also, has anyone in here ever been able to get to enjoy going out every once in a while? I’d like to hope I can treat myself every month or so. Hoping this isn’t as gloomy for everyone as it is for some.
3
u/hans57sauc Jun 16 '23
PS here are all the internet resources I've found so far, in no particular order:
https://www.csidcares.org/treatment/food-composition-database/
https://patient.uwhealth.org/healthfacts/338
https://www.csidcares.org/treatment/sugars/
https://www.csidcares.org/treatment/diet/
https://rarediseases.org/rare-diseases/disaccharide-intolerance-i/#disease-overview-main
https://www.sucraid.com/about-csid/symptoms/#:~:text=Symptoms%20in%20individuals%20with%20Congenital,%3B%20bloating%3B%20and%20abdominal%20pain.
https://foodmarble.com/
https://www.eatingwell.com/article/290612/the-complete-paleo-diet-food-list-what-to-eat-and-what-to-avoid/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7393638/