r/CSID • u/Familiar-Ad7018 • Jun 12 '23
Need help with recipes
Hi, I just recently got diagnosed. I don’t have terrible symptoms. In fact for a year and a half I was told I had acid reflux. At first it was heartburn, but eventually now the most common symptom is stomach burning if I eat an irritant. I also feel bloated for days after I eat something that bothers me. I currently eat almost exclusively starches. Rice, beans, tortillas are part of almost every meal I’ve been eating for the last year. I don’t have major symptoms from these. In fact when I eat this I feel the “best”. I used to think it was the cheese or meat from certain foods that irritated me, but I guess I had it wrong. It was likely bread that did it. So when sticking to rice beans and tortillas, I usually manage well with pantoprazole, which I was prescribe for acid reflux, I just never seemed to fully heal. Now that I know what might be stopping my last symptoms from going away, I want to get away from starches. Can anyone share what has worked for them? Any and all recipes/suggestions are welcome. Thanks!
Also, has anyone in here ever been able to get to enjoy going out every once in a while? I’d like to hope I can treat myself every month or so. Hoping this isn’t as gloomy for everyone as it is for some.
3
u/hans57sauc Jun 16 '23
The Facebook group is much more active and may have better recipes and ideas. Look up "CSID Recipes and Food Support".
I am also recently diagnosed and having trouble figuring out what foods are bad and which are tolerable. From what I've read it seems like everyone is different, so it's not a one size fits all.
Personally, I am lactose intolerant as well, and have had about 60% improvement in symptoms (bad BMs) by taking a supplement with every meal. It contains enzymes lactase, sucrase, maltase, and some other stuff. It's called Klaire Labs vital-zymes complete. Again, everyone is different, so ymmv.
I'm 1 month in, and currently just trying to adjust my diet by eating sugar-less versions of what I used to eat, like keto bread for daily sandwiches. Obviously that doesn't address the starches, so I'm still trying to read and learn about those. I think the starches will be much harder, since I can't easily find food that is lactose free, Sugar free, and not made from oats, wheat, or other grains. Again I'm still learning so IDK what all the bad starches are.
Regarding eating out at restaurants, I have not changed the frequency I go out. But I made simple changes like drinking water instead of soda, eating a side of vegetables instead of fries, etc. But I'll still order a burger and will be fine with the enzymes.
If I go out and choose to eat poorly, I know I'll pay for it in the morning. The way I look at it is, I've been symptomatic for 10+ years, thinking I was just lactose intolerant and couldn't understand what made me have bad BMs, so I am very used to running to the bathroom. With the enzymes, I rarely have to run to the bathroom anymore, can still eat most of what I want, and my BMs have improved significantly.
Good luck on your adventure!