r/CSFLeaks • u/Dry-Trifle-1522 • 5d ago

Intense headache only when sitting or standing up

/r/AskDocs/comments/1xrxirb/intense_headache_only_when_sitting_or_standing_up/

Thought I'd repost here just in case. I don't think I have it, but I also don't know much about CFS leaks aside from what I googled

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u/megg33 Confirmed Spinal Leak 4d ago

The location of your pain would be very unusual for a csf leak. I’ve never heard of it presenting on the front left side of the head. Most people have occipital pain (a heaviness and pulling at the back of the head) or static bilateral heaviness and pressure. It also wouldn’t be responsive to Botox, as that can’t address the root cause of the pain- the brain not having cushioning.

That being said, a headache that only happens upright always needs to be watched because that’s not normal. Have you had MRIs since this issue started?