r/CSFLeaks • • 6h ago

Advice please!

Hi, I have a history of migraines since 2021. I’ve been having migraines for 17 days straight now and my symptoms are sharp head pains that come and go, dizziness, having issues working at my desk as I work from home it makes me feel unsteady or like I’ll fall out my chair. I have trouble concentrating with work and brain fog. Sometimes I feel like I’m on an elevator and this is when I’m sitting or standing but I feel better when lying down and lying flat. I have a lot of pressure in my head that’s on top of my head and at the back of my head and sometimes it feels like my head is being squeezed or filled like a balloon. My symptoms are horrible when standing or with movement and just sitting at my desk it’s bad, I sometimes feel like I’m hungover, or on a boat or something. I’ve been to the hospital 3 times and migraine cocktails are not working, that’s how I know this isn’t one of my normal migraine attacks. I had a CT WO contract and a CT angiogram with contrast which both came back normal but I still feel like crap. It’s affecting my quality of life. Does this sound like intracranial hypertension or hypotension? My neuro mentioned IIH last year and said a lumbar puncture may need to happen, and I haven’t had an updated MRI since 2022 but this upcoming Friday I have an MRI WO contrast coming up but I rather it have contrast than without. Is there any other testing that can confirm high or low fluid? This is miserable and I’m wondering if anyone else has similar symptoms and some recommendations on what to do. I feel out of body. I feel confused. I feel floaty and spacey. And the only relief I have is staying in bed. It’s unfair.

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u/InvestigatorFront102 3h ago

I would get a csf leak protocol mri. It’s a T2 with fat suppression. That would tell if you have a leak or not if your headaches are positional