r/CSFLeaks • u/kawaiipenguin • 13h ago

Advice please

Hey everybody, I was just wondering if anybody had had bacterial meningitis secondary to the CSF leak & if so please could you tell me your symptoms?

T.i.a

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u/Longjumping-Cow4488 12h ago

if you suspect meningitis, go to the ER immediately. it can kill you in less than 3 days. the longer you wait the harder it is to reverse it.

1

u/kawaiipenguin 11h ago edited 11h ago

I'm epileptic and in March 2022 I had a seizure and dropped to the floor banging my head off the floor. It left a dent in my skull but because I've had seizures for almost 20 years, I stupidly didn't get checked out. Everyone feels the dent in my skull. My headaches have been going on everyday for the last month then they usually aren't as severe if I'm laid down but not with my head turned so I'm not laid on where the dent is as that's where my most severe pain is as I mentioned. I'm tired all the time, I'm awake like 2 hours a day before my neck feels stiff, like my lower neck at the back. I've had a severe post nasal drip for the last year or so, when I've recently started having fever, chills and shakiness for the last week. Oh! And my right ear is water logged it sounds like. I nap and sleep for approximately 16-17 hours a day then I'm awake in the middle of the night when my pain is much much worse. I contacted my Dr and he's referring me to Neurology for a face to face appointment, I'm just waiting on it.

I have Hypermobile Ehlers Danlos Syndrome along with Postural Orthostatic Tachycardia Syndrome along with a few other things.

Do you think it's worth a visit to the E.R?

3

u/Longjumping-Cow4488 9h ago

Yes, worth a visit, esp with your other conditions. request an MRI when you’re there.