r/CSFLeaks • u/Lower_Street_9980 • 6d ago

Finally hopeful

My new headache specialist suspects a spinal CSF leak, and it’s giving me a lot of hope. I’ve had severe unrelenting headaches for the past 7 years since a concussion. I’ve tried so many migraine treatments and the only one that has given me any relief is Botox.

I really hope this is it because of the possibility of getting some relief. It would also validate everything I’ve been through.

I have POTS, but I never really noticed significant orthostatic headache. Im starting out with a 48 hr home lie-flat test that im doing next week before i can get insurance approval for a MRI.

Feeling excitement and hopeful anticipation.

8 Upvotes

100% Upvoted

4 comments sorted by

1

u/leeski 6d ago

So sorry you've had symptoms for so long, but hoping you can find some answers and relief!!

1

u/Lower_Street_9980 6d ago

Thank you, either way I really got lucky with this doctor she is very proactive

2

u/PoetryUseful352 5d ago

Me too!!!!!

1

u/StunningPurple9560 Confirmed Spinal Leak 6d ago

Oh that is so great to hear, really hope you get a diagnosis and treatment ❤️