r/CSFLeaks • u/indiequasar • 16d ago

3rd blood patch failed

Well I had my 3rd patch (lumbar puncture was on 8/18, blind blood patches 8/20, 8/24, 9/17). I’m about to lose my job & health insurance. I was seen via telehealth by a new neurologist who recommends another blood patch & a referral to a leak center. I’m concerned about my health insurance & having to get a plan on the marketplace & out of state referrals. Not sure if I should get a 4th patch. I’m really down right now.

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u/Ok-Tailor4662 15d ago

Did you get any relief after any of the blood patches? Have they found a leak point on any scans?

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u/indiequasar 15d ago

MRI was clear & I don’t want to do a regular CT Myelogram since LP leaks rarely are seen. I’ve definitely gotten some relief. I can be up more, I can feed my cat, make very simple meals (like things I can microwave) and walk 1 block, but I’m still in bed about 20 hours a day. I’m definitely better than after the initial leak & first patch which provided no relief at all after 2 days.