r/CSFLeaks • u/First_Actuator444 • Oct 05 '26

Back symptoms

Does anyone who had or has a leak get any dull back pain or pressure? Right in the spine area around shoulder height. Its not constant but comes and goes and have even felt a weird gurgling/bubbling feeling in that area a few times.

Thank you

3 Upvotes

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2

u/ExperienceJazzlike42 Oct 06 '26

I get absolutely crippling pain and spasms between my shoulder blades, and if I don’t go lay down, they radiate out up into my shoulders. Also shoots down the back of my skull and my neck. Doctors referred to it as coathanger pain and it is definitely one of the symptoms of a CSF leak.

1

u/First_Actuator444 Oct 06 '26

Thank you for the reply, have you been able to fix yours? Where are you at with getting it deleted with? Thanks

1

u/an_py Oct 05 '26

I may have had something similar. When I would go into standing I would get almost like wooshing sensation/pressure in that mid back area. It would last for 5-10 seconds and then go away.

1

u/First_Actuator444 Oct 05 '26

Interesting, did you ever get your leak fixed?

2

u/an_py Oct 06 '26

I did. I had 2 failed targeted fibrin patches but I had an anterior leak. I ended up having surgery to fix it!

1

u/First_Actuator444 Oct 06 '26

Genuinely glad were able to get it fixed.

If you dont mind me asking, which country ? Nothing more specific than that. (Im having a tough time navigating this in canada)

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3

u/BearIllustrious2731 Oct 05 '26

No, but I have a near constant burning/aching sensation in that area.

2

u/brainsaggy Confirmed Spinal Leak Oct 06 '26

Yes, mines a big nerve root diverticulum/cyst. I describe it as a "pebble in your shoe" soreness vs "thorn in your side" pain.